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Claiming A Cause for Butterfly Skin
Another self-made man is Graeme Souness, a well-known professional in the sphere of football and a former manager of the football club Blackburn Rovers – today, this man is busy working on a much-frequented gall, which is dear to him. Currently well known as the man, who managed to bring Blackburn Rovers back to the Premiership after the team’s relegation in 1999, Souness is now trying to help raise funds for DEBRA UK which is the only organization, which works to support people whose lives are affected by epidermolysis bullosa – or butterfly skin disease.
It’s a Hard Job but Not for a Heavy Cause
In the next September, Graeme Souness is going to cycle 85 miles from Dover to London to support EB and spread information about the disease. Initially, Souness intended to perform swimming in the English Channel there and back; however, he failed to perform this part of the challenge because of a shoulder injury. Nonetheless, Souness wants to continue the fundraising campaign.
“It is going to be a challenge of course,” he added and you can understand why, for one, he [can no longer] physically do the swim as he has not yet fully recovered from shoulder surgery which he underwent earlier in the year. “If I can’t swim, then I will ride, I will do anything I can do; we all need to do our part to BE the difference for EB. ”
Personal Connection and Commitment
Graeme Souness had been indeed influenced by his friend Isla Grist, a 16-year-old EB sufferer. Graeme Souness has revealed that Isla’s bravery and the difficulties of other EB sufferers inspire him. “During the challenge, I will be dwelling on Isla and other thousands of children and adults who are suffering from the pains of EB at the moment,” he said. HELP THEM- “Let us show that we can make a change to their lives today and the following day.”
Insights from Isla Grist
Isla Grist has raised EB awareness and portrayed the daily struggles that patients with this disease go through. I asked Isla how it is to live with every egg thus: “Every morning I have to check that all my bandages are still on and that takes about twenty minutes Three times a week I have to change all my bandages and that takes at least five hours.” “Sometimes due to itching and pains, I have sleepless nights.” “HIV affects millions of people in the UK and across the world but many of them are living with this disease and its effects without anyone knowing it. ”That’s what Graeme Souness has to say.
Prior Achievements and Current Endeavours
During this last year, Graeme Souness and his team crossed 30 miles of the English Channel for EB research. Thanks to their actions, in addition to the funds from thousands of benefactors, DEBRA UK could start the process of drug repurposing, which resulted in the beginning of the first clinical trial for EB treatment.
A Call to Action
As for Graeme Souness, he is calling for public support for his new charity event. “I am praying for your support again in this task. I kindly call for your support to help us lend a hand, give support to the community and enhance the quality of life of EBers today. Research on finding a curative drug for this painful condition tomorrow,” he said.
Conclusion
Ten per cent of customers reducing electricity usage: Making a difference together
Another common activity that creates value and proves the manager’s desire to make a difference one way or another is the involvement in campaigning, fundraising or charity work. Even while coaching for a cycling activity, Graeme Souness goes on to encourage other people with his success and kind nature. You can thus assist him in enhancing the lives of EB patients and promoting research on this disabling disease.
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